It’s a long way to the top (If you wanna Rock ‘n roll!)

Self-Indulgent, Hand Wringing, “It’s all about me” bollox!

Friday 14^th October.

Today’s headline photo is the first AC/DC album I bought, it was released 38 years ago this week.

This blog and my book originated from a Facebook post on 26^th December 2016. I finished that post by saying I wasn’t trying to elicit sympathy, I reiterate that comment for this blog post. I’ve explained in the past that I find writing to be cathartic, if I ever needed a catheter then it’s been in the last fourteen days or so. The past couple of weeks since the last update have frankly been pants. I wrote a book called #ShouldertoShoulder and then ignored that very phrase. Instead of drawing on the strength of friends and family I withdrew into my own cocoon and wallowed in self-pity. One of the reviews of the book had mentioned that I’d always thought of others and never of myself. Well these two weeks were a self-indulgent orgy of “Why me?” I’ve no real idea why I suddenly felt like there was no point in going on. Ok, there had been a few knock backs, but nowhere near as bad as things were back in March. It took a moment of being as low as I’ve been since being diagnosed to kick myself back up again and to realise that there are people in far worse positions than I am.

The catalyst was perhaps calling the Endoscopy Unit at RBH to try and chivvy on the results from my colonoscopy, only to find out that they didn’t seem to have any record of me going in. It’s not the worst procedure in the world, but it’s also not one I really want to repeat in the next couple of weeks. To date the treatment I’ve received from the ENT Dept. Scary, Mr More Scary than Scary, Jo et al, has been wonderful. But I’m beginning to lose faith a bit in the rest of the hospital. The member of staff I spoke to in Endoscopy didn’t seem to understand that waiting on results is a stressful experience for patients, especially those of us who’ve had a bit of battle with cancer recently. I got no real comfort from her that they’d a) Find the results, or b) communicate back to me what the result is! At that point I felt let down, alone, angry and frightened.  Pretty stupid feelings when I’ve a family around me and friends who I know I can call on to give me a cuddle, despite the fact that they’re probably going through their own demons too. The results were finally found on Friday and the good news is that there was no sign of anything to be concerned about, I just wish I hadn’t had to worry for the, over three weeks, it took to report back.

As an aside I was listening to a radio debate following Fraulein May’s comments regarding foreign doctors working in the NHS. I slowly but surely started to seethe at some of the callers comments. So far this year I’ve been treated in 4 different sections of the RBH, with various degrees of satisfaction. If we start at the top, I give you Scary! She’s white, English, and by far the best doctor I’ve been under. Then let’s go to the bottom on the pile. The chap who made me feel 6 inches tall and destroyed me back in March when I was at my lowest point. He was white, English, and by far the worst doctor I’ve had the misfortune to be treated by. In between I’ve been seen by doctors and nurses from all four corners of the world, even a Welsh nurse! The one thing that the vast majority had in common was the ability to show the patient empathy. That’s all most of us ask for, to be listened to and to be understood. But, the patients have to play the game too. I saw, far too many times, patients being rude and to a degree, abusive, to the staff who were there to treat them. You may be in pain, you may be frightened, but you’ve got to understand the staff are just ordinary people too. This of course doesn’t count for the twat of a doctor (???) who called me a fake, he deserved both of the barrels he got! The NHS may well be creaking, but it’s still a damn sight better that the majority of 1^st world countries and it’s free at the point of delivery. Having said that I was once in and out of the A&E in Eindhoven with a broken arm in under two hours on a Saturday afternoon. The fact that 6 weeks later I got a letter enclosing an invoice for Euro 60 was a case in point, even worse was it was entitled “Slag Weekender” which apparently is Dutch for weekend surcharge! Try explaining that one to the current Mrs C.

 I let myself, my family, and my friends down on Tuesday 4^th October, that can’t happen again.

I don’t things have been helped by the fact that for the past couple of weeks I’ve been at home every day during the week. Max leaves around 8.30am, Carol an hour prior, so at time I can be by myself until early evening. I’ve not been out for work purposes for a while now, mainly down to the fact that my voice is so poor that I’m shying away from visiting customers. The last time I went to see a customer was quite painful for me. They kept asking what was wrong with my voice and I wasn’t in the right frame of mind to explain things fully to them, especially as it was a fairly difficult message I was delivering to them.

Somehow or other I’ve managed to go from 87kg at the end of June, down to 75kg the last time I stepped on the scales wearing just Chanel No. 5. Those of you who know me will agree that I haven’t got a spare 12kg to shed. I’m trying to eat as normally as possible but it’s a real struggle to get food down my throat. An example is that two weekends ago we went to some friends for dinner. I had probably 1/3^rd of the sized dinner of everyone else and it took my nearly half an hour longer to eat than the others, that is really depressing. All I can hope is that the magic balloon trick will be a short term solution. I’ve even gone as far as buying Complan, which is god awful stuff, but it gives the vital ingredients needed for a balanced diet. When I was really ill I was prescribed Ensure drinks, they were pretty good, but without a prescription they are hideously expensive. I’m not entirely sure if the NHS will fund those for me this far down the treatment line. I’m trying desperately not to rely upon a soup diet, to me that would be admitting defeat to the bastard that is cancer. There’s also no way I’m going to go down the “Puree” route, not whilst I’ve got most of my own teeth in my mouth.

Over the past few months I’ve obviously become more aware of cancer, what it does to you and how it effects those around you. I was pointed in the direction of a blog post by an Australian girl called Lisa. Her writings are truly inspiring, thought provoking, tear inducing and at times simply laugh out loud funny. The blog is entitled Terminally Fabulous, the title probably gives away Lisa’s diagnoses, but I’d encourage you to read her words and follow her on Facebook. If you do, please comment on her posts, she reads them all and they give her strength to carry one. 

http://terminallyfabulous.weebly.com/ . 

It was whilst reading one of Lisa’s posts last week, when I was feeling really low, that the light bulb slowly started to glow. I may be feeling a bit down, but I’m not dying. If I was I don’t think I’d be brave enough to open up my inner most feelings to the world. So, going forward, when I get down, and it WILL HAPPEN, I’ll wallow for a while, think of Lisa and lean on my family and friends.

Right, that’s the self-indulgent, hand wringing bollox out of the way for a while.

Last weekend saw the beginning of the upward curve. Rams took on Barnstaple at OBR. Now the Barum boys are old friends from National South West 3 days. Like Rams last season, they’ve found the promotion to National 2 South to be a big step up. A final score line of 31-20 to Rams is probably flattening, and hard luck for Barum. But forget the game. Barum are probably one of the few clubs at this level to have a female Team Manager. Vertiy White is a total star. I first met Verity possibly four or five seasons ago when I was still running the line for Rams. 

I’d arrived at my first match on the line without any flags, only for Verity to save my blushes just prior to kick off. If memory serves me right Rams won the game with a last minute penalty from some considerable distance. I hadn’t seen Verity since I’d been diagnosed, we managed to miss each other when Max was down in Exeter playing for the Badgers in the summer. The bear hug I received is still being treated with painkillers four days later. The White family had made a day trip of the match, Verity was with her father, son and daughter, a really lovely family.

Her son took great delight in telling me how much money he’d raised at the recent Macmillan coffee morning, I’ll admit to having a slightly damp eye at that point, damn the dust being blown up J I really hope that Barum stay up this season, obviously not at the expense of Rams, it’s a great ground to visit, full of very knowledgeable rugby folk, but very welcoming to opposing supporters too. I’m not going to be going to many away games this season, the travelling is still too tiring, but I have got the trip down to North Devon pencilled in in my calendar. The club house was pretty busy after the games on Saturday. I had to hang around for a while as Max had been playing over at Marlow for the 4^th’s. When he was eventually dropped back it was with a rather nice looking bruise on his face and apparently far more bruises in parts of his body that weren’t on view – welcome to Adult rugby son!

The week at work has been better, still no customer visits, but I’ve been kept pretty busy all the same. A busy mind helps me to stop wallowing.  

Wednesday started off as a normal, run of the mill day. A to the RBH for my Pre-Op Assessment. All seemed to go ok, even if my blood pressure is a tad on the high side. I’m now all set for a 7am start on 2^nd November, another “Nil by mouth” night awaits. The early evening, however was horrific.  I had arranged to meet a good friend for a beer or eight in the evening, so I jumped on the train, exited the station and made my way to our usual starting haunt, the Three Guineas. Disaster, the 3Gs is closed for refurbishment!! There are some things in life that a man finds difficult to cope with, having a vasectomy is one, finding out your favourite pub is closed is anouth. A number of years ago I used to use the Jekyll and Hyde on the way home from Basingstoke most evenings. Driving past one evening to see it surrounded by fire engines, which smoke coming from the roof was heart breaking. I digress, Jools and I settled down in a cozy pub, sank a gallon, settled all world problems and woke up with cracking hangovers!

I managed to get to the ripe old age of 54 on Thursday, one more year ticked off, a few more to come yet I believe. Just for a change we went to Nino’s for the evening celebration, another cracking night at our venue of choice for birthdays. A birthday card on the table, an individual profiterole with a candle in it for pudding (They remembered I can’t eat cakes at the moment) and a bottle of Amarone opened and waiting for when we arrived, and you wonder why we keep going back.

We’re off to Amsterdam at the end of the month, just prior to me going in for the balloon stretching. Four days of relaxation, great food, wonderful coffee and a bit of window shopping awaits. And it won’t be a Slag Weekender ;) It’s about 20 years ago since we last went, I doubt much will have changed, and we’ll certainly remember to look out for the cyclists when we exit the train station! I spent some time in an earlier life working for a Dutch company in Eindhoven. Carol would get a flight over to Amsterdam, I’d get on the train and we’d meet up for a long weekend which the company paid for (not sure they were totally aware of it, but hey ho!). Along with the more obvious attractions, which take about 10 minutes to get bored of, the city is great for gastro’s. I had probably the best steak I’ve ever eaten in one of the Argentinian restaurants, along with a sublime bottle of Malbec. Indonesian cuisine, chips with mayo, it has it all. Apart from of course it’s worth avoiding the genuine Dutch restaurants, unless you like food that’s flat, seriously “google” Dutch gastronomic delights, it’ll be a short search.

The book sales have just about dried up now, 108 copies sold to date. That’ll generate royalties’ of around £220 from Amazon, my employers have agreed to “Match Fund” what I raise so each of the charities will be receiving a payment of around £220 from me once Amazon remit the funds. I think it’s 90 days from the publishing date from what I can work out. Along with the sales drying up, so have the reviews. There’s only 18 so far. I would encourage you, if you’ve read the book, to please review it, it could drive further sales.

That’s it for this update, I’m ending the writing on a higher note that I started in this update which is all positive. I’m not sure when the next update will be, but I suspect it won’t be until after the magic balloon trick has been performed. I will try and get a photo of the “Stalker” in a window in Amsterdam though.

Thanks for reading this ramble as always.

To be continued……………

#ShouldertoShoulder

Balloon Animals and another General

(Where’s Scary when you need her?)

30^th September – The last days of summer.

Another regular monthly check up at the RBH fell due on Thursday. I’d hoped that it would be a quick in and out with just the camera up the nose and down the throat, however I was wrong as usual. An appointment scheduled at 3.40pm, eventually got into see Mr More Scary than Scary at 4.30pm, not a great start. This was the second time I’ve seen him, I know he’s the Head Honcho, but I’m struggling to warm to him I’m afraid. He’s very much business and little bed side manner and I don’t feel that I’m able to open up to him like I can if I’m seeing Scary. I had a couple of things I wanted to discuss, but felt hurried along. I’ll mail the CNS Nurses over the weekend, as at least they’ll respond. The camera up the nose and down the throat was the usual unpleasant experience, but at least it didn’t show up anything new to worry about, apart from the fact that my throat is continuing to contract. This is probably the reason behind my eating issues over the past few weeks and why I’ve dropped under 80kg’s again for the first time in ages. He’s offered a possible solution to this problem. In early November I’ll be having an Oesophageal Dilation done on my throat. Basically, I’ll be put under with another general anaesthetic. They will then insert a balloon into my throat and blow it up to stretch my oesophagus. This should have an immediate effect, albeit it may have to be redone every few months or so. I’m not sure how I feel about this if I’m honest. On one hand I want to be able to eat properly again without fear of throwing up (which is happening at the moment), on the other hand, I’ve had enough of operations for 2016 and really hoped that the scope up my bum was going to be the last one for a while. I will go ahead with procedure and I will ask if they can make a balloon giraffe for me to take home with me, I just don’t want to have to go through it every quarter. I know I’m being selfish, there are people in far worse places than me, indeed someone I’ve known for over 30 years is starting exactly the same procedures I went through last December, hopefully he’ll get the all clear, time will tell.

Thursday night wasn’t great, I felt very flat and quite down. A decent night’s sleep has helped my mood somewhat, as has reading a couple of messages basically telling me to get on with things. Sometimes the kick is what you need.

I ventured down to Nino’s on Friday morning, they’re raising funds for the Macmillan Coffee Morning, a subject close to my heart as know. I had a nice cup of coffee and bought four slices of delicious looking cake from young Nino, shame I can’t eat any of it, but I’m sure errant son will have my slice and the slice for his absent sister too.

The book is still selling slowly but surely, I’m up to close on 100 copies as I write. A few people have said they’re having problems downloading it. I think I over estimated how many folk actually have Kindles, but fear not, there is a free Kindle Ap. that can be downloaded here >> Kindle App so no excuses now chaps! Sales were boosted this week by the Reading Chronicle publishing the interview we’d had last week. A couple of nice messages were received via FB from folk I’ve never met who’ve read the article. 

Earlier in the week I was having a chat with one of the most committed (He should be) and enthusiastic people I’ve the pleasure to know. Between we’ve agreed that in the New Year we’ll come up with some impossible to ignore / refuse fund raising scheme, based upon my experiences, but involving far more people. I’ve got a horrible feeling that I’m going to get dragged into some hair brained idea which will involve major exercise on my part……………… however, I do need to get fit!! Watch this space for more details as the months go on, and have your wallets ready!

The weekend will probably be spent up at OBR. Rams are hosting Chinnor tomorrow (k/o at 2.30pm) for what should be a cracking match. Chinnor are flying at the moment and will be looking to revenge the two defeats last season to Rams, but we’ll be ready for them. Max will probably be playing for the Centaurs (3s) tomorrow, also at home, against Aylesbury. If the weather is dry I’ll be splitting my time with the camera between the 1^st Team Pitch and the bottom pitch.

Finally, for this short update. You may recall me mentioning a friend who practises Witchcraft, she was instrumental in helping me when I was feeling very low back in January. Well, Cat is undertaking a massive challenge in walking the entire coast of the Isle of Wight in just two days, she’s bound to see pristine condition Austin Allegro’s on her way. Cat’s raising funds for Lupus UK, her story is here >> Cat's Story  I suffered from a very minor case of lupus when I was in my early 30s, it disappeared of its own accord luckily as there is no cure. I’m sure Cat would appreciate any support (ie MONEY) from anyone who feels able to give.

As always, thanks for reading. The blog has now had over 9,000 hits!

If you’ve bought the book please add a review, if you haven’t bought the book then get logged into your Amazon account!

To be continued……………

#ShouldertoShoulder

What Happens Next?

23^rd September

Well, the book is published, the Colonoscopy now completed, so in both cases it’s time to sit back and wait for the results.

I’m slightly disappointed by the book sales if I’m honest. To date it’s shifted just over 60 copies, raising somewhere in the region of £150. With the amount of shares, tweets, Facebook posts and emails I’d hoped to be closer to the 200 sales by now. I know how many people read this blog on a weekly basis. I know that a lot of friends have shared the link of their pages. I’ve had folk from work sharing the link via their email contacts. But the sales just aren’t coming. Maybe the price is putting people off, or perhaps it’s just come in with too few pages?

Yesterday I was interviewed by Reading Chronicle, hopefully they’ll publish some sort of link next week which may induce a new sales spike.

Also, if you have read the book, please review it honestly on Amazon, there’s only 7 reviews there at the moment. More reviews will probably mean more sales.

Last Monday it was back to RBH to see if I could have the colonoscopy completed this time. You may recall that last time it was halted about halfway up (!!!) due to a couple of reasons. I was pretty nervous again when I arrived, not helped by not being able to eat since 11.30am the previous day. Arriving in the waiting room to see the TV was showing a program called Jeremy Kyle’s Emergency Room being shown didn’t exactly help, neither did all the adverts which just appeared to be selling food products!   

I was eventually called into the operating room about 40 minutes late, to be greeted by not one, but two consultants who were scratching their heads and looking through my notes. Hmmmm….. that didn’t really fill me with confidence I’m afraid. I’m allergic to remifentanil which is the normal sedation used, so they were discussing alternatives. The consultant mentioned to me that they could use Pethidine, but they were concerned that I’d been pumped full of the stuff last time and it didn’t really help. Her idea was for me to use Gas and Air as an alternative and that they’d work as a team, with me, to get us through this. The last time I’d used Gas and Air was in an ambulance on the way from OBR to RBH back in March, it worked really well then as a pain relief, so taking a deep breath and a good suck on the mouthpiece I lay on my side and thought of England!

The next 40 minutes or so were a combination of discomfort, a bit of pain, but a whole lot of laughing! There were two nurses and two consultants carrying out the procedure. Between them they kept talking to and encouraging me. One would point out when we were coming to a difficult part and advise me to take a good glug of gas. Eventually, the scope seemed to be coming out of my throat so we knew the procedure was complete. The big difference this time compared to last was the interaction with the people in the room, last time it was very clinical with no real discussion with me. I’m glad it’s over and if I ever need another one I’ll opt for the Gas ‘n Air option. Two biopsy’s were taken for the errant lump, the results should be back within 14 days.

I’ve got my usual Clinic appointment with Scary (Or one of her minions) this coming Thursday, I’m hoping that the results will be available by then so we can put this little episode to one side and file it under “False Alarm”.

This weekend will be spent photographing the Rams 5^’s as they’re the only team playing at home, and whichever Junior sides are at OBR on Sunday. The 1’s are away at Redruth, a long journey and difficult opponents. Max has a weekend off as the 3’s have no game. I believe they’re at home the following week, so I’ll get a chance to see him play properly for the first time this season. Hopefully the weather will stay kind, as I’m trying to continue to wear shorts until the end of September…………

As it’s been a whole two weeks since we got back from the Canaries I think it’s time to look at our next break. The current Mrs Clark is getting itchy feet. Perhaps a long weekend in France close to 11^th November around the battlefields, or a weekend of debauchery in Amsterdam?

As always, thanks for reading. Please keep sharing the blog / book link.

To be continued……………

#ShouldertoShoulder

#ShouldertoShoulder

(Something for the weekend?) 

As you already know, since December last year I’ve been having a bit of a battle with throat cancer, at the moment I’m 7-5 up with about 2 minutes of injury time left on the clock. When I started writing the blog of the battle, I was encouraged to also write a book of my experiences to give a wider insight.

Today the book has been published on Amazon - #ShouldertoShoulder

I’ve set the price at £3.77 ($5.00) and all proceeds raised from the sale of the book will be split equally between Macmillan Cancer Support, who gave me and continue to give me fantastic support, and The Berkshire Cancer Centre Fund who are raising funds to purchase a new linear accelerator machine which is used to deliver radiotherapy to cancer patients. I was zapped by one of these machines 30 times during my treatment. Sometimes there were delays whilst one of the two existing machines was down for maintenance. The last thing you want when you’re being treated is to sit around waiting beyond your appointment time, a new machine will help to elevate those delays.

I don’t expect to raise the £10,000 or so that my treatment cost, but every little helps as they say.

The book isn’t War and Peace and it’s unlikely to win the 2017 Booker Prize. It just tells the story of the past 9 months, with a lot back stories added in to give a flavour of my personality. Whether you’re interested or not, it would be great if you could buy the book as a charitable contribution. If you do read the book, I’d ask that you put a review up on Amazon when you’ve finished, be it good, bad or indifferent. The more reviews a book gets then the more likely it is that it’ll be picked up on reading lists, and more likely to raise a few more £’s. 

Oh, and if you could “Share” that you’ve read it, that would be appreciated. Equally, if you know of anyone else who may be interested in reading the book please feel free to send them the link.

As always, thanks for reading.

To be continued……………

#shouldertoshoulder

Holidays in Eden

Update 12^th September 2016

You know that saying, “It’s nice to go away, but great to come back”? Well that’s bollox, if I could I’d spend an awful lot more time lying on a beach drinking cocktails and talking to the children via Skype. After in effect our third holiday since the beginning of June its now back to the reality of work, rugby and of course the small matter of a rescheduled Colonoscopy to look forward to.

Fueteventura was a very relaxing break, I can certainly recommend the Barcelo group of hotels. Our room had a bed so big I swear it had separate post codes and a hot tub which according to Carol, took the time it took to drink a large G ‘n T for it to fill up. The hotel was adults only and asked gentlemen to wear long trousers when dining in the evenings. Now I’ve no real objection to that, but I do feel that some form of dress code should also have been stipulated for ladies. As much as I can appreciate a shapely bottom hanging out of a cut off pair of denim shorts, I’d really rather not look at one whilst I’m eating my tuna steak. The advantage of going half board I guess was that I could eat as much or as little as I wanted to. I’ve begun to struggle quite a lot with eating again. Carbs are a real challenge, so being able to pick exactly what I wanted to eat was probably a blessing. We did eat out a couple of nights, but I stuck to fish which as the moment still seems to be ok. It was also fairly amusing to see folk queuing up at the pool at 9am to stake out their towels on the sunbeds, people even ran to get the bed of their choice. We didn’t actually bother as we caught the free shuttle bus to the dunes each day, far more relaxing. 

As you’d probably expect if you’ve read this blog in the past, whilst at the hotel we “People Watched” and made up our own stories about the folk we saw day to day for a week. As well as Ms Arse Hanging Out of Her Shorts, we also had Wiggy and Bride of Frankenstein, a couple we presumed were from Russia. We saw them most mornings for breakfast, most days on the bus to the beach and most evenings in the restaurant. Not once did I see her smile, or even look at Wiggy. If she had smiled there could well have been a quick visit back to her Plastic Surgeon on her return to Moscow. Now Wiggy was a cross between the cool Mafia boss from Italian Job and Fabio Capello. However it was one of the most obvious syrups I’ve seen since I worked at Avco Trust. In Avco days we had a chap who had two wigs, a long one and a short one. He used to go out at lunch time and say he was going to the barbers, returned wearing the short version, it was priceless.

Corrallejo has changed quite a bit in the 30 odd years since we were last there, hardly a surprise I guess. The usual influx of restaurants and bars catering specifically for the British and German tourist have sprung up, but the area around the harbour seems to have stayed vaguely authentic. Whilst we were on half board as I mentioned, we did tend to disappear into town after we’d had dinner to escape the inevitable “Entertainment” put on by the hotel. I think we were quite lucky as we stumbled across a place called “Rock Island” down a quiet side street. The bar has various “Turns” in playing live acoustic rock music. Of the three combo’s we saw over our stay I can safely say they’d kick ass of any of the acts appearing on X Factor or the like. (Ok Paul Cooper, I know that when you’re pissed it’s easy to think all bands are good, but………………………….) Check out these guys on YouTube https://www.youtube.com/watchv=5qq0NA9Xs9Q the bar was probably a bit more like a large front room, you had no choice but to sit with other people and chat to them during breaks in the music. I like that, as being in a hotel it’s easy to get suck into your own little world of judgement. On our last night, despite the best intentions of having a quiet one before travelling home, we ended up in Rock Island until about 1.30am knocking back vodka and tonics with a couple who we’d met as strangers three hours prior and left as life long friends! Can’t for the life of me remember their names though J Anyone recognise the one who isn’t the stalker? 

So our seven days were spent on the beach, in the Spa (Where very flattening swimming caps had to be worn), eating, drinking and listening to music. A perfect seven days. It all went a bit pear shaped on the way home, by being delayed for over three hours on the return flight. Little or no information was given out by Thomas Cook at the airport and as we were one of the last flights out that evening the airport cafes and shops were closing down. It wasn’t until we eventually boarded that the pilot advised the reason for the delay was due to a truck hitting the plane and the subsequent safety checks to make sure it was still ok to fly. Now that’s a perfectly good reason to delay the flight, a bit of communication wouldn’t have amiss however. Arriving back home at 5am in the morning after a 40 minute diversion on the M25 did put a little bit of a downer on what had been a great break. I’ve obviously sent a claim into Thomas Cook, by their reputation they’ll no doubt ignore the claim.

Whilst away I missed the start of the rugby season. Rams lost their first league match at home to a strong Taunton side, but bounced back last Saturday by defeating London Irish Wild Geese. Max played in two matches whilst we were away and managed to be on the winning team for both. Thanks to Catman I was kept up to date with the Centaurs match score whilst sitting quaffing a bottle of wine in the hotel bar waiting for the taxi back to the airport. After spending a week with just my iPhone camera and little compact it was good to get back up to OBR yesterday to get some shots of the Rams Colts in a season opener friendly against Wallingford.

Back to work tomorrow, I’ve resisted turning the work phone or laptop on today, I’ll be pleasantly surprised tomorrow when the “Ping” goes rapidly, once it’s charged up of course! I’m meeting my Editor tomorrow night, so with a fair wind, and not too many amendments I’m still hopeful of getting #shouldertoshoulder published by the end of this month. I’m also hoping that there won’t be any need to a follow up book following the Colonoscopy. My main task for the next couple of weeks will be to try and get rid of the tan on my face and neck before my next scheduled appointment with Scary, she’ll go ballistic as my neck got slightly burnt! I entirely blame……………….. ok, myself!

As ever, thanks for reading.

To be continued…………. At least for a couple more weeks!

#ShouldertoShoulder

The Hunger Games

Brief Update – 

The NHS comes in for an awful lot of stick it would seem. However I’ve either been incredibly lucky to date, or we really do have a Health Service that is the envy of the world. When I saw Scary last week she said she didn’t think that I’d get seen for the forthcoming little Op. prior to Carol and I disappearing off on holiday again. Well, on Tuesday morning the phone rang at home and it was a rather friendly person from the Endoscopy Dept. at RBH asking me if I could come in for the Op. the following Tuesday. Now that’s what I call service, in fact they could have done the procedure earlier, but for various reasons I couldn’t. Carol picked up the “Magic Potions” that I’ll need to take on Monday prior to my visit. Helpfully, the instruction packet for the laxatives advise being close to a toilet when you take them! Who’d have guessed? I’m also not allowed to eat anything from 2pm on Monday through to when I have the operation, I’m only allowed clear liquids, not sure if that includes whisky or not, but certainly bins scrumpy I guess. I get the feeling that Bank Holiday Monday in the Clark household is going to be a barrel of laughs.

Thursday was Carol’s birthday. I made the schoolboy error of forgetting to phone Nino’s for a booking until Wednesday, by which time he was full. So off we trooped into Reading to join the great unwashed, luckily they weren’t all trying to eat out at the same restaurants as us! London Street Brassarie managed to fit the five of us without too much drama. Decent food, but let down a bit by slow service. We haven’t seen much of Errant Son this weekend as he’s been off to “Fest” with his latest squeeze, even though it’s probably only about two miles away as the crow flies they’ve been coming back each night to a decent bed and a warm shower.

On Saturday I managed to get to my first away match with Rams since last December. They played their final preseason friendly against Luctonians RFC from Leominster. My parents used to live about five miles from Leominster, but I’d forgotten how far away it was, spending over five hours in the car probably wasn’t the brightest idea I’ve had. The match was a typical disjointed preseason affair. I’d think that Rams were probably missing 10 players at least from the team that will start the league campaign next weekend at home to Taunton. There was a pleasant surprise at the end of the game as I went to confirm the scores with the ref. One of the assistant refs came up and said “Hello Paul, how are you?” Now I’m sure I’m not the only one who gets confused when they see people out of context to the normal circumstances you would meet them in. The AR was a chap I’d done a lot of business with in the past in my job, I hadn’t seen him for perhaps three years and I’m pretty sure I’ve only ever met him whilst he was wearing business attire. I knew Peter ref’d at a decent level, but I didn’t realise he’d been promoted up to Level 4 Rugby, so there’s a good chance he’ll be at one of the Rams games, either home or away this coming season. The photos from the game weren’t the best I’ve ever taken, but I’ll use the excuse that the light was all over the place in the first half, and in the second it started raining so the gear was shoved away for the day.

Next weekend is the opening proper of the season, Rams entertain Taunton at OBR and on Sunday the Mini’s and Junior’s get their seasons underway. This will be the first time for 12 seasons that I’ve missed the first weekend. Part of me is a bit pissed off, but a far bigger part is thinking of 30 degrees heat in the Canaries! I’ll also miss Max making his senior debut for the 3s away to Shire Hall, but there will be plenty of other chances. I believe he’s going to the Badger Bash after the match, so probably just as well we’re away as it’ll give him a week to a) Sober up and b) Redecorate if necessary.

Sunday was a day of getting things sorted for the holiday next weekend. As I’ll likely be out of action for much of Monday and Tuesday, possibly Wednesday too, I had to get into town early to sort out our Euro’s, a rate of Euro 1.15 at John Lewis was as good as it got, still bloody “Ouchy” compared to this time last year when I got close to Euro 1.45! It was vaguely amusing to see the “Great Unwashed” being washed as it was chucking it down sideways, and as always it seems I bumped into a regular at Artigiano’s!

I realise I haven’t posted a recipe for a while, and as I won’t be able to eat anything exciting on Monday it would seem like a good chance.

Thai Green Curry :

Prep Time : 15 minutes, depending on traffic.

Cooking time : 20 minutes.

This is a simple but tasty dish. Jump into your car, drive to Waitrose, avoid “The Great Unwashed” & Yummy Mummies, buy the prepared Waitrose Thai Green Curry. Pay, jump back in car, drive home. Heat oven to “Hot”, follow pack instructions, dish up, eat. An almost fool proof recipe. Enjoy, have this one on me! 

The time saved in buying a take-away meant I had enough spare time to build a play list ahead of the Colonoscopy on Tuesday, apologies for the toilet humour!

• ·         Open up and say “Ahhhh” – Poison
• ·         Shake a leg – AC/DC
• ·         Movin’ Out – Aerosmith
• ·         Dirty Back Road – B52s
• ·         Burnin’ for you – Blue Oyster Cult
• ·         Against the wind – Bob Seger
• ·         Born to Run – Bruce Springsteen
• ·         Under Pressure – David Bowie & Queen
• ·         Tunnel of Love – Dire Straits
• ·         If Dirt were Dollars – Don Henley
• ·         Digging Deep – Fish
• ·         Don’t Stop – Fleetwood Mac
• ·         Loss of Control – Green Day
• ·         Mr Brownstone – Guns ‘n Roses
• ·         That Smell – Lynyrd Skynyrd
• ·         Warm Wet Circles – Marillion
• ·         For Crying out loud – Meatloaf
• ·         Even Flow – Pearl Jam
• ·         Stir it up – Tesla
• ·         Let it roll – UFO

Monday was a fairly quiet Bank Holiday to begin with. I made up the magic movement potion, stuck it in the fridge and waited for the 6pm witching hour for the effect to take place. The stuff tasted god awful, but the first litre was drunk and it was then a case of waiting to see what happened………………. And whilst waiting I was kept amused by my Facebook friends ideas of humour.

Tuesday dawned, for me, at around 4am with my stomach advising me it was probably a good idea to get up and remove the Andrex from the fridge. I won’t go into details, but I wish I’d been given this potion when I was suffering so badly from constipation whilst I was going through Chemo and RT.

Arriving at the hospital I was incredibly nervous, not helped I guess by the fact that I hadn’t eaten since midday on Monday, not drank since 10am that morning and was generally feeling god awful. A 20 minute run through with a nurse eased my concerns to a degree, the procedure should be no more than uncomfortable and would be managed by pain relief. 30 minutes later, for a variety of reasons, not least being the extreme pain I was in the procedure was stopped roughly ½ way through. This means I’ll have to go through all the build up again when we get back from holiday and I’ll be seen by a Senior Consultant rather than a Junior Registrar. So it was home for a much needed dinner and early night. I started the day feeling nervous, I ended the day feeling frustrated. I’d really hoped that today would be the last time I’d have to undergo any procedures at the hospital for a while. To realise I’ve got to go through it all again is a bit crushing.

Wednesday was my last working day until 13^th September, there’s something quite satisfying about setting the Out of Office and turning off your work phone. When I’m back it’ll be a real case of back to the coal face, working full time for the first time since December of last year, missing out on afternoon naps (Although I may sneak in the odd 40 winks), being full on back on the treadmill. You may have noticed that I haven’t mentioned the fact that I may need more treatment for the stomach lump and that is because I’ve decided I won’t need treatment, it’ll be a false alarm and nothing to worry about.

Thursday was the day of the National Rugby Awards up at Twickenham. Carol and I travelled up by train and checked into the Twickenham Travelodge (ever the romantic), it was a long day and I was a bit concerned about being totally cream crackered when it finished and having to drive back home again. The afternoon VIP Reception was fun, albeit a bit drawn out. I got to meet the other nominees in the Volunteer category, truthfully any one of us would have been worthy winners of the award. The others all came from what I’d class as Junior clubs, all level 7 and below, or didn’t have Senior sections. The tour of Twickenham stadium was interesting, the home changing rooms are out of this world and need to be seen to be believed. It was then on to the pitch side drinks reception before heading into the function room to meet the other Rams and settle down for dinner and the awards. 

Rams were also up for an award for the Facility Development of the Year, but missed out to Whitley Bay Rockliff RFC, again a much smaller club than ours. By the time it got to the Volunteer award I’ll admit I was pretty nervous. I wasn’t aware that the winners were going to be interviewed on the stage by some bloke from Sky Sports. My voice was pretty shot at this point, down mainly to having been in air conditioned rooms for most of the day. I needn’t have worried, as the winner was Simon Ursell from Tetbury RFC. I’d chatted to Simon quite a lot in the afternoon, he was a genuine chap who really deserved the award. His club have one Senior Men’s team, some Juniors and a full section of Mini’s. They also survive despite having only one pitch to play on. A true grass roots club by the sound of things. It’s easy to say with hindsight that it’s an honour just to have been nominated, but truly that is the case. There are something like 100,000 club volunteers around the country, to be on a shortlist of 6 is a pretty good result. I’d love to see what the nomination actually said…………… As you would imagine, with 750 people at the dinner, all of them associated in one form or another with rugby the evening started to get a bit lively. So Carol and I took our leave and walked slowly back to our hotel having enjoyed the day immensely. (Carol even got to sit in the Presidents seat in the Royal Box, the first female president of the RFU perhaps?)

I was hoping that I’d have the book #shouldertoshoulder ready for publishing by now, but it looks like it’s going to be delayed now until probably the end of September. Good things are worth waiting for, and so are mediocre ramblings I’m led to believe.

That is for now folks, we’re off to sunny Fuerteventura tomorrow for a week of tan topping, wine guzzling, meat eating, relaxation! And we won't be worrying about the appointment on 19th September, anyway the doctors will probably be on strike! 

As always, thanks for reading.

To be continued (for a little while longer)……………….

#shouldertoshoulder

Here’s Johnny………… I’m back.

There’s good news and there’s some not quite so good news. The good news is that you can get to read my inane ramblings again for a little while longer. The not so good news? Hmmmmm…………… read on.

After the fun and games of having my Biopsy I went to the RBH to meet the Head Honcho a couple of weeks ago to discuss the results. He made Scary look like Mother Theresa in his blunt and direct approach. The biopsy was clear, there was no sign of cancer. However he was concerned that my throat was still pretty swollen and suggested that unless the swelling reduced there was a fair to even chance that cancer might make a guest appearance again. With that he took a phone call, and said they’d see me in three months at the end of October. So we left feeling pretty upbeat to have been changed from monthly check-ups’ to quarterly, happy days.

In the middle weekend of August, Carol, Max and I travelled down to Porthcothan Bay in Cornwall for a long weekend of camping. I’ve been going to Carnevas Camping site for somewhere in the region of 45 years, indeed Carol and I had our honeymoon there (we were broke!). We had a cracking four days, it only rained for about 3 hours on Saturday morning, the rest of the time was glorious sunshine. When the sun shines in Cornwall you’re hard pressed to find a better place to be.

We left around lunch time on Monday, after visiting Boscastle for breakfast and a wander up the cliffs. The fun and games started about 20 miles from Exeter on the A30. Reports came through that the road ahead was closed and we started queuing about 12 miles from the M5, so I shot off at the nearest exit and wound our way through various narrow B roads to Exeter City itself. By the time we’d made our way through the city we were at least an hour behind schedule. Getting onto the M5 just north of Exeter should have meant a journey home of just over two hours. Oh no, it took nearly three and a half hours. Stop start traffic all the way up to Bristol.

It was just after we’d driven past Taunton that the phone rang, answered hands free of course! At this point in the journey home I was feeling pretty pissed off, so the answer to the ringing was a rather curt “Yes?” rather than my usual cheery greeting.

“Hi Paul, it’s Jo from the Royal Berks here, how are you?” Hmmm……  I thought, pretty sure this isn’t a social call…..

Jo went on to ask if I could recall what Mr More Scary than Scary had said about my PET Scan. From memory it wasn’t discussed, we only talked about the biopsy which was clear. It was at this point that my heart stopped beating. Jo asked if I was free to get into the clinic to see Scary and discuss the PET Scan on Thursday, as Scary was away for two weeks after that. Call me a cynical old Hector, but they weren’t going to be calling me in to say “Hello Paul, everything is fine, we’ll see you next year.” Sleep was a struggle for the next three nights ahead of the appointment. My mind kept going back to December of last year when we were called back in on Christmas Eve to have our first meeting with Scary and Jo. What followed was probably the most emotional 72 hours of my life. The first “FB” post telling folk my news, sitting the kids down and saying “Dads got cancer”, seeing the friends at OBR, you get the picture.

Thursday arrived, I struggled to do anything overly proactive work wise in the morning, my mind was on other things. I got to the RBH as usual an hour ahead of my appointment, walked around in the sun and drank a large cappuccino before checking into the ENT Dept. My appointment was at 4.20, and I was eventually called in at 4.50 to meet the original (& best) Scary. She explained that whilst the biopsy had proved to be clear for my throat, the PET Scan had looked at my whole body and a lump had been found in my stomach area. Bearing in mind my recent history this can’t just be ignored.

What does this news mean? Well, the 14 Day Pathway has risen its head again, however as Carol and I are off to the Canaries on 3^rd September I won’t get seen prior to that. I’ll be having an exploratory operation, hopefully pretty soon after coming back, which will dictate what further treatment, if any, is required. Scary was pretty positive in her diagnosis and I do trust her judgement. She used lots of long words and complicated phrases, the main ones I heard were “Laxatives” “Stong” and “Not overly pleasant” I think someone is going to be sticking something up my bottom again! It could well be nothing to worry about at all, and that is the way we’re going to look at it until proven otherwise. I'd also mention that if it was that urgent it would have been a case of "Do not pass Go, do not collect £200, go straight to the operating table"

Scary then really showed why she’s a “Top Bird”. Bear in mind the clinic had run late, I was her last patient for the day and I’m sure she wanted to get away. But no, she took the time to ask how I was getting on, and not just from a throat point of view. I mentioned that I’m struggling to eat any carbs at the moment which surprised her as the RT shouldn’t have had too much effect. Her advice is to try eating “Slippery” food, so I guess that’s a diet of Oysters from now on in.

So, where does this leave us? Well, Carol and I will be disappearing to the Canaries, Anna will be back off to Uni and Max will continue with his A Levels after nailing his exams at the second time of asking. Life will go on as normal. Work will be done, bills will be paid, photos will be taken, and words will be written. If, and it’s a bloody big IF, the news comes back as not great then as a family we’ll kick it back into touch, just like we did last time.

As always, thanks for reading.

To be continued………………

#shouldertoshoulder