Friday, 12 July 2019
Life as a Lary in foreign shores.
This blog update is going to focus largely on what it’s like being a “Lary” in a foreign land, plus some tales from Arillas. For those of you who may be new to reading my ramblings, a “Lary” is someone who’s had a total laryngectomy due to a reoccurrence of throat cancer and now speaks and breaths via a hole in their throat. My voice, which used to be quite deep now sounds like a rather camp Darth Vader.
In the two years that I’ve been a “Lary” we’ve been abroad three times and holidayed in the UK another three times. With the exception on getting some fine sand in my stoma when we were on Gran Canaria and having to resort to a rather fetching bandana
I’ve not really had too many issues with being away from the comfort of home. Normally when flying I’ll pack three separate supplies of medical kit to cover the trip. One to go into my suitcase, one into Carols and one in my hand luggage. This should cover all issues with lost luggage. Daily I have to use filters, sticky base plates, cleaning brushes, adhesive removers, cleaning towels, skin barriers to name just a few supplies. This time I put two sets into my luggage and one incomplete set into my hand luggage!! On arrival at our apartment in Arillas I soon discovered that between the three packs of supplies I’d only packed the very bare minimum to last the 10 days. I was going to have to hope that I didn’t have many “Blow outs” and that my throat didn’t react to the heat and dryness. Whilst on the subject of packing, I’d also forgotten a couple of lightweight t-shirts, my Rams gym shorts and a second pair of swimming trunks. Razors, enough handkerchiefs. E45 cream, you name it, I forgot to pack it. Overall a bit of a Horlicks before our holiday had even started. Carol has vowed to go through my suitcase with a check list before we go away again in September. The flight out was uneventful and only about ½ full, meaning we both had room to spread out and enjoy the Hendricks and Tonics. Corfu is two hours ahead of the UK so it’s entirely acceptable to be drinking G&T’s at 7am GMT. The only problem I had on the flight was when we started the decent into Corfu airport. The change in pressure made my ears hurt like heck and as I can no longer clear by holding my nose and blowing out I was in a fair amount of pain for a good 40 minutes. Eventually it cleared, but not at all pleasant. I’d like to add how kind the stewardess was on our flight, she could see I was struggling, both with my ears and my stoma and was happy for me to visit the toilet after the lights had gone on for seatbelts to be worn for landing so that I could clear the stoma in private.
We had stayed with Anna Krasaki and her family at Anna's Studios four times, both as a family and as a couple. The apartments are always spotless and whilst not the 5* luxury of the Canaries they are more than adequate for our stay. We only really used the apartments for sleeping in to be honest. There is a lovely pool to enjoy, if you haven’t got a stoma in your throat that is of course. I don’t normally miss being able to swim, but the combination of 30+degree heat and a couple of small glasses of Corfu Brewery IPA had me making my way down the steps of the pool and sitting on a handy ledge. Carol was keeping a close eye on me, knowing my ability to be a bit of a dick at times, but I was happy as Lary (Sorry, couldn’t resist!) sitting on the ledge enjoying the cooling pool. To me it was a pretty big step. I did venture into the sea as well as the pool but was much more careful, only venturing as deep as my waist and then only when the sea was dead calm (& usually when I needed a wee!). When we’ve holidayed on the Canaries or in Cornwall I’ve not risked the sea as it’s rougher and more unpredictable than the Med. Whilst I couldn’t keep Carol company whilst she was enjoying herself swimming, as least I could have a bit of a paddle to cool off from the midday sun.
As always when I go abroad, or indeed anywhere where I’m meeting new people I worry about their reaction to the way I sound. I’m not so bothered about the way I look as I’ve never exactly been a stunner, but the way I sound does concern me. Without exception, the Greek people we met only treated me with respect and politeness. In some way sounding and looking as I do has advantages. The people who own the restaurants we ate in would remember me (they may well have never met another Lary), they would remember the cocktails we ordered (Black Russian, Pina Colada and Gin Fizz – 3 for 2), they would remember the wine we ordered. The only adverse reaction we had the entire break came from an English woman who insisted on turning 45 degrees to stare at me every time I spoke in a restaurant. Initially I ignored it, but after 90 minutes or so of being stared at I was getting a little bit upset. What she should have been doing was talk to her morbidly obese husband about his eating habits rather than staring at me. As we left she made a point of again staring at me, so I apologised to her that the “Entertainment” was leaving early. She didn’t take too kindly to my comment, but tough. On the upside, that evening I experimented with taking photos of the wonderful sunset on my iPhone through the bottom of a glass. I was quite pleased with the result.
We've always commented from our trips to Corfu how much the Greek people seem to like children, never more evident than when we went to the local festival held one evening whilst we were there. Midnight, drinks flowing, lamb cooking on the spit, Greek music being played by the band and loads of local kids running around, having fun and annoying no one at all. It was a strange evening as it was aimed at locals rather than tourists, we hadn’t a clue what was going on, but it was highly entertaining. we were told afterwards that it's used as a good excuse to meet up with other friends from neighboring villages who you may not have seen for a few months. We made our way back up Cardiac Hill and I conked out within minutes, that’ll be the 3* brandy I was drinking. According to Carol the festival was still going strong at 2am J
I’ve struggled when we’re away with the portion sizes of food served in restaurants, this holiday was no different I’m afraid. Be it Corfu, Fuerteventura or Gran Canaria I just can’t eat huge portions of food these days and I feel guilty if I leave half the portion on a plate. Due to the surgery I have to chew food almost to the point of a pulp before I can swallow it properly, otherwise the valve gets gunked up. This means that as well as eating far more slowly than a normal person, I also lose my appetite fairly quickly. It sounds quite weird, but the more expensive the restaurant, the smaller the portions served. You can eat out very cheaply in Arillas, one of our favourite places is Gratesla. It’s a traditional taverna run by a family. It was nice, on our first night, to be remembered, genuinely, for our previous visits in years gone by. The food served is fresh, mainly fish, tasty and one portion would feed the entire front row of the Rams 1st XV J Two courses, wine, coffee and a cheeky brandy rarely came in at more than
5. We ended up using
Gratesla mainly for lunch as it was so popular in the evenings that the service
suffered a bit. We’d have three or four hours on the beach, then retire for a
leisurely lunch. Three starters or a fish meze shared between us with a ½ litre
of dry white wine. Walk up heartbreak hill and an afternoon snoozing by the
pool. Evening involved a G’nT at Anna’s lovely bar before strolling down the
hill to the cocktail bar for our 3 for 2 offer, and then deciding which
restaurant we’d frequent. Horizon, relatively expensive for Arillas, but top
quality. Thalassa, great food and superb service. Ammos if we were feeling like
a bit of a different choice in cuisine. It was a tough holiday as you can tell.
A strange quirks of Greek cooking would seem to me to be the relative lack of
spices involved. The majority of dishes will have an overload of oregano,
perhaps some basil or rosemary, but not a lot else. I can manage for 10 days,
but I was craving a bit of chili or perhaps some paprika by the time we got
home. All the restaurants had in common one thing, that was the total work
ethic of the staff. It wasn’t uncommon to see the same staff working at
lunchtime and again in the evening. It’s a case of making hay whilst the sun shines.
Work hard from May until the end of September, and then sleep for 5 months!
We both noticed on this visit that Arillas is smartening itself up. The restaurants look better, there’s decking on some of the frontage, a coffee shop has opened which served lovely fresh croissants and a decent coffee too. There was no rubbish lying around at all, unlike Corfu Town which had rubbish piled up in bags on every street corner. They’re even beginning to embrace to idea of recycling, albeit in a small way, but it’s a start. We did our bit by refusing plastic straws with our drinks, again a small gesture, but a start. Far fewer people seemed to be smoking, even the Greeks who must be amongst the largest population on smokers in Europe seem to have largely packed in. It was nice to sit on the sand on the beach and not to be picking fag butts up! Some of the restaurant owners mentioned that so far the season had been quiet compared to previous years, they were mainly blaming Brexit and I’ll admit we did delay our booking somewhat on the back of possible disruption. But with St Theresa of May dithering until October we felt we needed to get away regardless. It’s been a challenging 2019 so far, what with the MRI’s, Fine Needle Aspiration, biopsies, skin cancer and other scares, so it was good to just relax totally and forget about the trials and tribulations of the real world.
I've become aware that in the very few photos that have been taken of me since becoming a Lary that I’ve had my hand up by my throat subconsciously covering up the stoma, as if I’m embarrassed of it. I made the decision that on this holiday I’d “come out” and just bare all for the camera. It’s not like I can change things, or that suddenly one day my voice box will magically grow back. Also as I was often dressed just in my budgie smugglers and a smile there seems little point in hiding the plastic protruding from my neck. So from now on it’s me, my ugly face, crocked nose and my Lary. Maybe holding a Pina Colada in a fake coconut shell with pink flowers…………….
In some way before we left for Corfu I’d been secretly dreading it. I thought I’d struggle with the heat and the walk back to Anna’s Studios. When we arrived and I found I’d made a total mess of packing my supplies I was really worried how I’d cope. Well I’m pleased to say that the hill wasn’t as hard as I envisaged, probably helped by the intake of Black Russians, Gin Fizzes and Pina Coladas. And my medical supplies lasted far longer than they do in the UK. I normally change the base plate every day and use a different type at night. On Corfu they were last up to three days without needing to be changed. I didn’t need a more soothing one to sleep with either. Perhaps assisted by the generous 5* Metaxa I had before bed. The filters would last a day and a half or longer, rather than being replaced about every 10 hours at home. Maybe the local red wine helped. Normally at home I’m having to stick a cleaning brush into my speaking valve four or five times a day, on Corfu it was once in the morning and that was it. Maybe the pre-dinner G’nT helped. So, in conclusion I think I need to live in a country that has a warm and dry climate and cheap booze. I’ve set up a Just Giving Page and all donations would be appreciated
In all seriousness, it was a great holiday, one where I hardly noticed the fact that I’m now two years into being a Lary. Pretty sure the #Stalker enjoyed herself too…………………………….
....................... she was 90% fueled by alcohol!
(Just for a change all photo's on the blog were taken on my iPhone as I forgot to take my DSLR with me.............. )
As always, thanks for reading.
To be continued………………
Friday, 7 June 2019
The Good, The Bad, and The Ugly
This will be a brief update as the last 6 weeks or so have been pretty quiet and uneventful. I finished my last blog update after I’d had a Fine Needle Biopsy on the lympth nodes in my neck. The NHS lived up to my expectations by phoning my at around 6.30pm on a Friday night to tell me that the biopsy had come back with the results showing the nodes were reactive rather than cancerous. “The Good”. Great news to receive ahead of a weekend watching the Rams beat Canterbury and the U7s beat the U8s in a water fight at the End of Season Presentations.
The remainder of May was pretty standard, lots of dog walks, including Nev’s first visit to Nino’s for lunch, first with Anna, then with Carol and finally with Max. (Anna was the most expensive companion!)
In a rare (???) moment of madness I seem to have volunteered to become the new team manager of the Rams Sirens. Why I think I can manage 30+ ladies who play rugby I’ve got no idea, I have enough problems managing to work out where I’m supposed to be each day. But I guess it’ll be a blast until they realise I’m a psychopathic megalomaniac………………………
Regular readers may remember that I was due to undergo some plastic surgery to remove a Basal Cell Carcinoma (Skin Cancer) from my upper cheek, I knew it wasn’t an urgent procedure and wasn’t overly surprised to be still waiting at the beginning of June. However, on Monday of this week I received a call asking if I was able to attend the Day Surgery Clinic in Thatcham to have the operation the next day. All I was told over the phone was that my appointment would be at 12.30. Here’s where “The Bad” starts. I arrived about 12.15, eventually sussed out the most confusing parking machine in history and checked in at reception. It was here that I began to think I’d possibly misunderstood the phone call of the previous day. I was told to take a seat and wait to be called up to the Day Bed Unit. At around 12.30 a nurse came down and asked who was waiting for the Plastics Clinic? Four of us duly replied. Two chaps in their 90’s and another bloke about the same age as me, minus a “Lary”. We trooped upstairs to the ward where the two 90 years olds were shown into bays whilst the other bloke and I were shown into an open waiting area and told to get changed into theatre gowns. I’m sure most of you are familiar with the garment. It ties at the back and allows your backside a fair degree of freedom to the elements. We were given an additional gown to wear as a dressing gown to protect our modesty. I was glad I’d worn clean underwear, indeed that I’d worn any underwear at all. I was under the distinct impression that I was being treated with a local anaesthetic and wouldn’t need to strip down for the op.
We had been told that the Surgeon would come round and see us and then we’d be told the order of the list. At about 1pm my gown clad companion was called into the main ward area to see the Surgeon, after about 10 minutes she came to see me to run through the procedure, I was still sitting in the open waiting area. She was surprised that I was driving myself to and from the hospital as I should have been told not to drive, she was also surprised that I hadn’t been advised that I was part of a list, rather than a specific appointment. The next real contact I had with a member of staff was at around 3pm when I asked one of the nurses when I’d be told where I was on the list for surgery. She thought that I hadn’t already been told, but eventually came back to say I was last. I knew that the two old guys would be seen first, and that was quite right, they’d earnt the right to go ahead in first. I was still sitting in the open waiting area with medical and admin staff wandering past and relatives coming onto the ward to pick up patients who’d already been treated.
It was around this point that for some reason or another I began to get a bit upset. Here I was, not the best communicator in the world, being stuck in an open area for the whole world and his mother to see, whilst everyone else was ensconced on the ward. Now it wasn’t just the four of us, as the ward was shared with two other procedures, I’d seen at least three people leave the ward to go home, so there must have been free bays, yet I was still stuck by myself.
At about 5pm, four hours after I’d changed into my fetching attire I was eventually advised by one of the nurses that I was due into theatre. I’m afraid at this point I vented. Why, if I was last on the list, was I asked to change into gowns over four hours previously? Why had I been left to sit in an open waiting area when there must have been free bays on the ward? Why had no one had the courtesy to advise me of the delays? I was seriously unhappy, pissed off and distressed about the whole humiliating experience. The nurse I vented to had no answers, she retreated to the nurse’s station and said in a voice loud enough for me to hear “He’s not very happy”. No Shit Sherlock!
A short while later I was shown into the operating theatre. The surgeon apologised profusely for the delay and said she’d be speaking to the staff at RBH about the lack of info I was given over the phone regarding the appointment. Four injections were administered to numb the area around the tumour, a certain amount on improvisation was needed to protect my stoma for any leaking fluids (Blood I presume) and we worked out a thumbs up / thumbs down system for any questions the surgeon needed to ask. Then the digging out process commenced. It wasn’t painful at all. I could sometimes feel a bit of pulling and pushing, but no pain. In fact I almost dozed off. After about an hour I was led back to the same waiting area and told I could get dressed again.
The next day I wrote an email to the feedback team at RBH complaining about the way I’d been treated. A phone call was received that morning asking for my date of birth as they couldn’t find me on their system. I was struggling with my voice a bit and the caller hung up on me. I’m not going to take the matter any further as it’s just not worth any upset to me. I’ve no idea if any of the staff from the RBH still read this blog, if they do then perhaps they could pass on the “Could do better” message. I would add that in the four years I’ve been going through the cancer wringer I’ve only had two bad experiences out of perhaps thirty or so procedures, but both could so easily have been avoided.
Amongst all the crap that has been 2019 so far it had become obvious that the Current Mrs C. hadn’t had a holiday to speak of yet. So, at the end of this month we’re flying off to Corfu for 10 days, staying with our friends Ioanna Krasaki and her lovely family in the tiny resort of Arillas.
I don’t think we really plan to do much more than walk to the beach, sit by the pool, eat, drink and relax. Many, many times I think back at the crap I’ve put Carol and the kids through over the last four years and the support I’ve received back with never a murmuring of complaint. Max has finished his first year at Uni and will be off to Crete with Laura soon. Anna is settled and happy in God’s own County. Time for Carol to get some well deserved TLC, so long as she’ll drag me up Cardiac Hill.
As always, thanks for reading.
To be continued……………….
Friday, 26 April 2019
That End of Term Feeling…….
The last couple of months have involved a bit more investigative treatment into some problems I’ve been having with my neck. That got me thinking about all the treatments I’ve undergone over the past 3 + years. Before I expand on what’s been going on I thought I’d give a quick break down of all the treatments I’ve been subjected to.
Treatment Description Discomfort Level
CAT Scan Lie down, not painful. Scans the body for nasties. 3 - Slightly claustrophobic.
Biopsy Take a sample of body tissue to test for cancerous cells. 3 - General Aesthetic, so a bit sore the next day.
PET Scan Similar to a CAT Scan, but does the whole body. 5 - More claustrophobic than a CAT Scan and went on for longer.
Fine Needle Aspiration Taking a biopsy using a non-invasive procedure. 8 - Bloody painful and uncomfortable. Hated it!
Radio Therapy Zaps the bastard that is cancer with radio waves. 7 - Far worse than I envisaged. Made me feel god awful.
Chemo Zaps the bastard that is cancer with chemicals. 5 - Not as bad as I thought. Made me feel tired, but no sickness or hair loss.
Surgery Cuts out the bastard that is cancer. 6 - Pain levels were very low, obviously the long term effect was major.
Ultra Sound Cold gel, magic camera, bit of Witchcraft. 1 - Pushes a bit on the scars of surgery, but no real problem.
MRA Scan Similar to a CAT / PET Scan. 8 - One of the worst experiences of the last 3 years. Hugely claustrophobic and incredibly noisy. HORRIBLE!
Life Breathing, eating, working, being “normal” 7 – A lot more difficult than I’d hoped it would be.
About two months ago I noticed a lump developing on the right hand side of my throat, roughly where the original cancer had been. It grew to the size of a lemon and was obviously concerning to me. I mentioned it to the Consultant on my regular check-up and he agreed that it needed a bit of investigation. Firstly he booked me in for an Ultra Sound to see if that could ID the problem. Up I rocked to the RBH, wearing a Rams top (there’s a surprise) to be greeted by the Dr. who’d performed the Fine Needle Aspiration on me back in January 2016. He recognised the shirt, and I recognised him. His two sons both play for Marlow RFC which we’d talked about in the early days. He performed the scan, and reckoned it all looked ok on the swelling, he thought it was probably down to muscle growth. I left feeling pretty relieved as my record of being not very good at getting better is pretty good. I was a bit concerned to then get a phone call from the Consultant to say that he’d like me to have an MRI Scan to see if there was anything going on that the Ultra Sound had missed. Dotting the I’s and crossing the T’s I hoped. I was quite surprised when the appointment came in for 9am on a Sunday morning! After having had CAT Scans and PET Scans I wasn’t really worried too much about a MRI. My God I was wrong. It was truly horrible. I was strapped in so I couldn’t move an inch and then the machine started. For the next 40 minutes I couldn’t move and was subjected to a series of beeps, buzzes, squeaks and crashes that really got inside my head. A couple of times I was very close to sticking my hand up and shouting “I’m a coward, get me out of here”, but I just about managed to get through it by closing my eyes and trying to think happy thoughts. Again I was concerned to get yet another call from my Consultant to say that whilst the swelling on my throat was indeed just muscle growth, they were concerned about some abnormal nodes that had shown up on the left hand side of my neck. He’d booked me in for another Fine Needle Aspiration procedure (see above for the pain levels!). Suddenly, when I thought I could get on with life, I took a massive curve back to thinking “What if?” I went to a very dark place.
A bit of levity was brought to the proceedings when I replied to a Tweet by Victoria Derbyshire, of BBC fame, asking if anyone was stockpiling any sort of supplies because of potential issues with Brexit. I said that I’d been over ordering my Lary supplies for about six months as they all came from an EU country and I didn’t want to risk being without what I class as essential supplies. I was contacted by one of the members of the production team on Victoria’s daily BBC2 show to ask if I’d be able to appear the next day to discuss my concerns. Without really thinking about the possible consequences I agreed to travel up to the BBC studios on Regent St and have make up put on me. Bright and early on the Wednesday morning I arrived at the Beeb, getting through reception was a challenge, as was meeting the “runner” who was sent to meet me, they obviously missed the bit about I’d be a neck speaker. Eventually I was shown into the Green Room which despite my expectations didn’t have wall to wall free booze and dancing girls. Instead the room was fairly drab, had cardboard boxes in the corner and two flasks of tea or coffee, not even a digestive biscuit. I was there about five minutes when in walked another victim for the show. This chap had travelled down from Norfolk to talk on the show about how he was stockpiling canned and frozen food, he was under the impression it was going to be a light hearted discussion, seeing me sitting there complete with Lary seemed to shake him a bit. Poor lamb J
Victoria came in and introduced herself before we went live. She took a good 10 – 15 minutes chatting with me about the procedures I’d been through, how I coped and my concerns. She showed a huge amount of empathy to me, as a fellow cancer victim herself. We were shown into the studio about 10 minutes before going live, it was fascinating to see how a TV show works. Even up to 2 minutes before going on air the script was being changed. Victoria has told us not to look at the cameras when we were talking and to try and treat it just like a conversation. I thought I’d struggle, but once we got going it seemed quite easy. It helped that one of the other guests who was beamed live from her home in Glasgow was also discussing her concerns about the continued supplies of her husband’s medical supplies. I did feel a tad sorry for Mr “Canned and Frozen Food” as he was a little out of his depth. After about 20 minutes our portion of the show finished and we were ushered out of the studio, down the corridor and back into the bright lights of Regent St. My 15 minutes of fame were over, back to the day job, unless of course my phone rang with offers of Panto in Weston-Super-Mare………….
…………………… no phone calls from Movie Moguls, no calls from Panto Agents, just a bunch of Tweets accusing me of wasting NHS resources, being a hoarder, and other such total bollox. For the record, the kit I order has no sell by date, so if there isn’t a problem with whatever type of Brexit is finally agreed then I’ll just under order for the next few months following the agreement. Maybe next time I’ll think a bit more before agreeing to go on live TV. And, also for the record, my shirt was red, not pink J
In my last blog post I wrote how I hoped I’d be able to mention that Rams had won their league the next time I published. I’m really pleased to say that on a balmy April day I travelled down to Clifton RFC and witnessed one of the most complete performances of the season from the team as they ran out comprehensive 45 – 21 winners to take the league title. This means that next season Rams will be playing in National League One, the third tier of rugby. From a side I started watching when they were Level 8 this is a massive achievement. Everyone involved with the club should be hugely proud of the achievement of the players, support staff, coaches, and all the other people who put in the effort week in, week out to get the team on the pitch.
and the second season of the Sirens 7s side
I’ve mentioned in past blogs about the “Lary Group” I attended at the Royal Berkshire Hospital a few times. It’s not really for me, but the work they do to promote Lary’s, or Neck Breathers as we’re also known is invaluable. A recent article in the Reading Chronicle highlighted a concert that the Lary choir would be holding at a local school. Two members of the group I attended will be singing in the choir. However what got me about the article was the fact that social isolation the public perception were both mentioned as a major problem of being a Lary. Over the last 19 months or so since I had the chop I’ve become more of a recluse, more inclined to go home and hide, less able to hang around and try and converse. And that’s with my friends…………… When it comes to strangers I really just try and avoid scenarios whereby I may have to interact in a vocal manner. The one area it’s been ok has been when I’m walking Nev in the mornings. We tend to go to the same place most days, and at the same time, so we meet the same people. There’s something about walking a dog that makes you say “Good morning” to a fellow dog walker. Eventually you start chatting as you walk the same walk, you get to know people’s names, a bit about their back story, all because you happen to be the assistant to a dog. The other really easy interaction is with kids. Nev & I often visit the local coffee shop on our afternoon walk, invariably there will be pre-school kids there who want to stroke the “Disney Dog”. Now that he’s a bit more mature Nev doesn’t mind being petted too much, so long as he gets a few dog treats to compensate for his indignity. I’ve noticed that when the kids are asking me if it’s ok to pet Nev that they don’t bat an eyelid when I croak back at them, oh how I wish everyone reacted the same way as the children do. Work is really difficult at the moment, I’ve no confidence when it comes to speaking to customers either over the phone, or face to face. I really need to get my act together, bite the bullet and accept that I’m not normal, but I am me.
The Easter weekend was spent visiting Anna and Tom up in Leeds. Like just about the whole of the UK we benefited from a mini heatwave. Yorkshire in the warmth and sunshine it a truly beautiful county. We visited a few local sites during our stay including one morning and early afternoon spent walking around Knaresborough Neville enjoyed his stay "Up t'North" even if he struggled to understand to other dogs and their strange accents.
On Wednesday of this week I was back at the RBH for the next and hopefully final procedure for a while. It stated off with another Ultra Sound to see whether I needed a Fine Needle Aspiration (FNA) following the MRI. It took a good 10 to 15 minutes of pushing on my sore and scarred neck to ascertain that yes, they would need to stick needles into my neck. It hurt, it hurt a lot. The neck area they were exploring was the area most invasively affected by the surgery I’d undergone in June 2017. There is little or no muscle left in that area now, so each time the needle entered my neck there was no protection. The process of obtaining cell samples for a biopsy involves twisting the needle around once it’s in my neck. The best way of describing it is to think about a corkscrew being inserted into your neck and then twisted to get an errant cork out. After 40 minutes of total unpleasantness I was finally free to go. I asked the Dr. when the results would be ready. His answer of 5 to 10 days, but they’ll contact you if there’s a problem didn’t go down well. I need to know if the news is good, not if it’s bad! An email to the CNS Team asking for the results to be given to me one way or another has been sent……………………… Two days on and my neck is still incredibly sore and bruised.
After a fairly quiet week I’m looking forward to traveling to Canterbury on Saturday to watch Rams finish off their league campaign. It should be a good match as Canterbury have finished runners up in the league, behind Rams. Sunday sees the end of the Mini and Junior rugby seasons. I’ll be at OBR to photograph the Mini’s as they receive their End of Season awards.
That’s all for now folks.
As always, thanks for reading.
To be continued……………..
Friday, 22 March 2019
Bouillabaisse, Sashimi and the hottest pea puree in the world!
This past week has been all about gastronomic and photographic delights, with a couple of curve balls thrown in for good measure. Carol, Neville and I had four days down in our beloved Porthcothan Bay and I had no intention of cooking any meals other than perhaps breakfast, so the local restaurants and pubs were in for our company whether they liked it or not.
Regular readers of this blog will know by now that I’ve been visiting Porthcothan for pushing 50 years now. The journey is about four hours with a stop for Nev to stretch his legs, and by the time we get to Wadebridge it really feels like we’re coming home. This visit was extra special as I’d booked a guided photography walk with a local photographer I’d been following for a while on Facebook. Kate offers various walks in the area of Padstow to photograph the stunning scenery and get advice at the same time. Landscape photography is a genre that had largely passed me by over the past 40 years or so, and I was keen to gain some knowledge on the subject. I was not to be disappointed. We met Kate at the ferry in Padstow to cross over to Rock and begin our three hour walk along the beach to Daymer Bay, and back to Rock along the dunes. Carol and Neville were along for the ride too, this would be Nev’s longest walk to date and I was a bit concerned that it might have been too much for him. Oh silly me, he was in his element! What followed was a very pleasant three hour stroll, chat and lesson in photography. Kate is a patient teacher. The tips and tricks she gave me have enthused my love of photography even more. I’ve already planned out some shoots in and around the Berkshire area to hone my new found skills.
Kates work can be found on her FB page Kate Whis Photography which also links to her main webpage. I can’t recommend her enough if you happen to be in the area and enjoy photography. The remainder of the break was spent practising what I’d been taught and trying to get Neville to stop running in front of the lens every time I’d set a shot up. He loved his time on the beaches, chasing after his ball, digging holes and generally acting as a dog should.
As I mentioned at the beginning of this blog, I had no intention of cooking whilst we were away. Our first port of call was the pub nearest to where we were staying, the Tredrea Inn overlooking Porthcothan Bay. This pub has some of the most spectacular views imaginable, it had also gained an unenviable reputation for poor food over a number of years. I’m so pleased to say that down to the hard work of the staff and owners it now has a 5* Food Hygiene rating and serves wonderful home cooked food. It also serves a rather good pint of Doombar! We were greeted by Steph like old friends when we showed up for lunch on our first day, I do suspect however that she was more pleased about getting Kromis kisses from Neville.
Our next venture out to eat wasn’t quite so satisfactory. The Cornish Arms in St Merryn is owned by Rick Stein, more of whom will be mentioned later. We’d eaten there on previous visits and loved the food and atmosphere. I’m afraid this time the same can’t be said. Both visits this year produced lovely food, however the second time it took the best part of an hour to be served two plates of hake and chips, the restaurant wasn’t busy, it just seemed from the faces of the waiting staff when we questioned the delay that they’d forgotten the order. This happens and is not a major issue. What is a major issue however is staff moaning about each other when paying customers are within ear shot. This happened on our first visit of the week. We were sat in a corner booth with Neville. The table next to us was occupied by two members of staff who seemed to be off duty but who were holding court with staff who were serving customers. They were moaning about other members of staff and generally behaving in a very unprofessional manner, certainly not something I’d expect from a Stein run business. I felt quite sorry for the waiter who was looking after us as he’d explained it was his first night in the job. He was fine, but some of his colleagues I suspect will be looking for new jobs in the not too distant future if they continue to act in such a manner.
Now for the other side of the PadStein empire. One of our guilty pleasures when we’re down in Porthcothan is to visit the world famous Sea Food Restaurant in Padstow. We’d booked a fairly early table for dinner on the same day we’d done the walk with Kate, figuring we’d both be fairly well knackered. Here’s where the reference to Derek William Dick AKA Fish comes in. It was only after we’d ordered that we realised we’d gone for two albums by the big man, Sashimi and Bouillabaisse (guess you had to have been there!). My sashimi was sublime, served with picked ginger, pickled bean sprouts and the hottest pea puree in the world, it very nearly blew my head off J As always the food was to die for, the service just perfect and the ambience lovely. I can only suggest the Rick passes on some tips to his staff at the Cornish Arms.
It was with a heavy heart that we had our final walk on the beach at Harlyn Bay on Thursday before starting the long journey back to Berkshire. We’ll be back, soon!
Finally, a couple of housekeeping points to bore you with. I’ve had my appointment with the Plastic Surgeon who confirmed that the lumps on my face are indeed skin cancer, but dead easy to cut away with no lasting effects. Carol had asked me to mention a few other bits and pieces she’d like looking at whilst I was under the knife, but the poor surgeon was running late and it didn’t seem right. Hopefully I’ll be under the knife in the next few weeks.
It wouldn’t be a blog unless I mentioned rugby at some point. Last weekend saw the Rams Sirens finish their season on a high with a victory over Hackney Ladies RFC
As always, thanks for reading.
To be continued…….
Friday, 15 February 2019
"Hot Rails To Hell"
Happy Places, Lost Friends and Rock 'n Roll
The beginning of 2019 has been quite reflective for me. Despite my own assurances that I won’t “look back” I’ve spent a fair amount of time reviewing where I was three years ago. I was in a really crappy place, getting towards the end of the Chemo / RT cycle and suffering like heck. It’s so easy to think to yourself “This time three years ago………..” that’s not a healthy place to be, life is forward, not backwards. So, to elevate the gloom we’ve booked our first holiday of the year. Three nights in Porthcothan, our “Happy Place” in March should go some way to getting me back on track. As well as the traditional evening at the Seafood Restaurant I’ve also booked in for a guided photography walk with for the Tuesday. We’ll be walking from Rock to Daymer Bay and taking photographs as we go. I’ve been following Kate on Facebook for a while now, her photos are superb and resonate with me due to the locations. It should be a good morning, three hours of walking, talking, photos, Neville, Carol………….. what more could I ask for? The resulting photos will be published once we get back. I’m really looking forward to the experience, whilst I’ve been taking photos since I was in my early teens, I’ve never really had a lesson.
Earlier this week I was chatting to a friend on Facebook about Badminton, and the possibility of making a comeback on the court. Back in the day, and I’m going back 40+ years ago here, I was a fairly decent player. I played County and South East England at a representative level. My parents drove me all over the country at weekends for tournaments and County matches. I made a lot of good friends over the years of playing. Two friends stick out, two friends I’ve lost contact with over the years and would love to speak to again.
The first of those friends was Robert Day. I first met Rob at the U13s Berkshire Restricted Tournament, he was an U13, I was an U12. I beat him J Ok, he’d just recovered from a broken hand, but I still won, about the only time I ever did beat him at singles. The next year we came across each other at various tournaments and matches and struck up a close friendship which would last through the next 15 years or so. He introduced me to parties, the Red Lion in Wokingham, smoking (I'll forgive him, I should have had more will power!), the B52s and photography. We made a formidable doubles partnership, based on grovelling our way out of matches with superb defence that would wear the opposition down, ok, we bored the pants off them, but it worked. Rob and I had our ups and downs, he once pinched a girlfriend of mine and married her, I eventually forgave him, it was a lucky escape on my part. When he and the said stolen girlfriend emigrated to the US of A Carol & I took on their two cats, Tiffiny and Tucker. The marriage didn’t last (Not Carol and I, we’re still together), but Rob came back to the UK on a fairly regular basis, when we’d meet up for a pint and a chinwag. The last time we saw each other was about 10 years ago when he was over with his new wife. We played an hour of badminton, I won, that was the last time I played, and I haven’t seen Rob since. The last I knew Rob was working in IT in San Diago.
The second of those friends was Jane Willoughby. We first met whilst playing for Reading Youth BC as the age of 13. Jane went to Maiden Erlegh School, was an all-round sportswomen, drank pints, and lit her fags by using the biggest box of matches known to man. We struck up a great friendship, stretched at times by me being a prick, and we were a feared mixed double pairing in the Reading leagues. Jane was very bright, passed her A Levels and went on to get a great degree from Loughborough University before embarking on a career as a Primary School teacher. She married Anthony Wilkes a number of years ago, and again, for one reason or another we lost contact. I would dearly love to get back into contact with both Jane and Rob. Searching FB, Twitter and Linkedin have thrown up no results, maybe the power of Social Media and random blog posts will prove to be more successful.
For a sport that meant so much to me when I was growing up, I just gave up overnight. I’d been playing a match about half way through the season, got home quite late in the evening, my knees were killing me, I hadn't enjoyed it, and I never picked up a racket in anger again. Both Anna and Max went on to represent Berkshire at Junior level so perhaps sport does run in the genes.
(I suspect I'll be told off for posting this pic of Anna when she was probably about 13)
To keep with the throwback to the old days theme of this blog on 22nd February Carol and I are off to the Hammy Odeon, ok, it's now known as the Hammersmith Apollo, but will always be the Hammy Odeon to me, to see Blue Oyster Cult, a band that Rob introduced me to back in probably 1978 / 79. They’ll be best known to most people by their only UK hit, The last time Carol and I saw BOC live was 24 years ago when Carol was very heavily pregnant with Anna. We travelled up to the Marquee in London, an iconic venue and the stewards found us a quiet area to watch the performance from, I think they were worried she’s go into labour during the encore. I’m slightly apprehensive about the gig, the two original members of the band must be pushing 70 years old now, but I guess good music never dies. in our numerous trips to the Odeon in years gone by it always seemed that the same support band were playing, three pints on London Pride were their name :)
I haven’t yet had a date to see the Plastic Surgeon for the next cancer op. but I see that as a good thing as it can’t be that serious. I have had a couple of massages on my neck as the lympth nodes are a bit swollen on the right underside of my chin, as is one of the muscles effected by the surgery, so it’s likely I’ll be seeing the massage team for a while longer yet. I'm beginning to feel defined as a person by the cancer. A few years ago at a schools rugby festival I met one of my old school masters who I hadn't seen for probably 30 years. He looked at me and said, "I can't remember your name, but you were the badminton player weren't you?", that's how I was defined as a kid. Then it was probably as the bloke who was the easiest in the world to persuade to go for a pint after work. Now it's as the chap with a hole in his throat. Oh well, better than the other option I guess.
That’s about it for this update. I really hope that next time I write I’ll be able to say that Rams have been promoted to National 1. They currently stand 12 points clear at the top of the league with eight games to go.
As always, thanks for reading.
To be continued………………
Neville in his "Happy Place" - Porthcothan Beach
Friday, 11 January 2019
Third Time Lucky
I felt a certain amount of Déjà vu regarding whilst writing this post.
Going back to December 2015, when I eventually built up the courage to go and see my GP regarding my inability to talk louder than a church mouse, I encouraged anyone who’d had a long term concern to put on their big boys pants and get themselves to their GP. I’ve had a small patch of dry skin on the inside of my knee for a year or so, and more recently a patch of skin above my cheek that was scabbed and dry for at least 4 months. As usual I ignored them. Eventually I’d had enough of waking to a bloody pillow case each morning and made an appointment to see my GP. I was lucky to get an appointment 90 minutes after my phone call, and didn’t have to go through any hoops with the Receptionist as to why I needed an appointment.
The Dr. examined both patches of skin (luckily I was wearing clean underpants) and decided that with my history of being really bad at getting better, he’d better refer me up the line. Hello “14 Day Pathway”, it’s been a while. If you’re referred as a potential cancer risk you should be seen within 14 days of the referral, hence the 14 Day Pathway. I was contacted by Royal Berkshire Hospital less than 24 working hours of my initial GP’s appointment and given a hospital appointment six days from the referral. Outstanding performance from our much maligned NHS.
I rocked up at the Dermatology Dept. 10 minutes early for my appointment. The sign on the wall said “Clinic Delays”, it was boiling hot and packed. Welcome back to the NHS I know and love. Eventually I was called in, it was actually 5 minutes before my appointment was due, but I’m trying to build up the tension here a bit.
The Dr. asked me to go into a cubicle, remove my shirt and drop my trousers. Who am I to refuse such a polite request? He proceeded to then examine my upper body and back with some sort of magic scope thingy, before taking a closer look at my knee and my cheek. The upshot is that my body is in good condition for my age (I think he was talking about skin type rather than muscle mass!). The area around my knee could be treated by being frozen, but the patch of skin on my cheek will need surgery as it is a Basal cell carcinoma, ie Skin Cancer L “not again” was the first thought that went through my head. The extremely good news is that BCC is the most common form of cancer, easily treatable, rarely spreads or returns and has nothing whatsoever to do with my previous two versions. This has most likely been caused by exposure to the sun over the years. I’ve been referred to a Plastic Surgeon for a consultation on how to proceed, but it’s likely that a small op, done under a local anaesthetic will be offered. As it’s a Plastic Surgeon I’m going to ask if he could possible straighten my nose out whilst he’s there. Hopefully this will all be done in the next couple of months. Whilst I was still in the “Trousers Down” position he went on to “freeze” the patch on my knee, blimey it was still stinging 24 hours later, but it should fall off in the next couple of weeks. I presume he means the patch of skin will fall off and not my leg.
So, to reiterate, if you’ve got something wrong with you, and it’s hanging around, GO AND SEE YOUR DR, do not pass Go and do not collect £200.
Finally for this brief update, watch this short video of Rams scoring the winning try in the last minute of their match last week against local rivals Henley RFC. It should take your mind away from me sitting sans trousers in a cubicle. The match was one of those “I was there” moments J -
As always, thanks for reading.
To be continued…………….
Life as a Lary in foreign shores. This blog update is going to focus largely on what it’s like being a “Lary” in a foreign land...