Friday 12 July 2019

Life as a Lary in foreign shores.




This blog update is going to focus largely on what it’s like being a “Lary” in a foreign land, plus some tales from Arillas. For those of you who may be new to reading my ramblings, a “Lary” is someone who’s had a total laryngectomy due to a reoccurrence of throat cancer and now speaks and breaths via a hole in their throat. My voice, which used to be quite deep now sounds like a rather camp Darth Vader.

In the two years that I’ve been a “Lary” we’ve been abroad three times and holidayed in the UK another three times. With the exception on getting some fine sand in my stoma when we were on Gran Canaria and having to resort to a rather fetching bandana 

 
I’ve not really had too many issues with being away from the comfort of home. Normally when flying I’ll pack three separate supplies of medical kit to cover the trip. One to go into my suitcase, one into Carols and one in my hand luggage. This should cover all issues with lost luggage. Daily I have to use filters, sticky base plates, cleaning brushes, adhesive removers, cleaning towels, skin barriers to name just a few supplies. This time I put two sets into my luggage and one incomplete set into my hand luggage!! On arrival at our apartment in Arillas I soon discovered that between the three packs of supplies I’d only packed the very bare minimum to last the 10 days. I was going to have to hope that I didn’t have many “Blow outs” and that my throat didn’t react to the heat and dryness. Whilst on the subject of packing, I’d also forgotten a couple of lightweight t-shirts, my Rams gym shorts and a second pair of swimming trunks. Razors, enough handkerchiefs. E45 cream, you name it, I forgot to pack it. Overall a bit of a Horlicks before our holiday had even started. Carol has vowed to go through my suitcase with a check list before we go away again in September. The flight out was uneventful and only about ½ full, meaning we both had room to spread out and enjoy the Hendricks and Tonics. Corfu is two hours ahead of the UK so it’s entirely acceptable to be drinking G&T’s at 7am GMT. The only problem I had on the flight was when we started the decent into Corfu airport. The change in pressure made my ears hurt like heck and as I can no longer clear by holding my nose and blowing out I was in a fair amount of pain for a good 40 minutes. Eventually it cleared, but not at all pleasant. I’d like to add how kind the stewardess was on our flight, she could see I was struggling, both with my ears and my stoma and was happy for me to visit the toilet after the lights had gone on for seatbelts to be worn for landing so that I could clear the stoma in private.

We had stayed with Anna Krasaki and her family at Anna's Studios four times, both as a family and as a couple. The apartments are always spotless and whilst not the 5* luxury of the Canaries they are more than adequate for our stay. We only really used the apartments for sleeping in to be honest. There is a lovely pool to enjoy, if you haven’t got a stoma in your throat that is of course. I don’t normally miss being able to swim, but the combination of 30+degree heat and a couple of small glasses of Corfu Brewery IPA had me making my way down the steps of the pool and sitting on a handy ledge. Carol was keeping a close eye on me, knowing my ability to be a bit of a dick at times, but I was happy as Lary (Sorry, couldn’t resist!) sitting on the ledge enjoying the cooling pool. To me it was a pretty big step. I did venture into the sea as well as the pool but was much more careful, only venturing as deep as my waist and then only when the sea was dead calm (& usually when I needed a wee!). When we’ve holidayed on the Canaries or in Cornwall I’ve not risked the sea as it’s rougher and more unpredictable than the Med. Whilst I couldn’t keep Carol company whilst she was enjoying herself swimming, as least I could have a bit of a paddle to cool off from the midday sun.

 Again, for those new to the blog, the stoma in my throat leads directly into my lungs, so if I was to go too deep and lie back too far I’d get water flowing into my lungs and effectively be drowning. I’ve done in once, in the early days, whilst having a bath, it took a good two days to get over the effects.

As always when I go abroad, or indeed anywhere where I’m meeting new people I worry about their reaction to the way I sound. I’m not so bothered about the way I look as I’ve never exactly been a stunner, but the way I sound does concern me. Without exception, the Greek people we met only treated me with respect and politeness. In some way sounding and looking as I do has advantages. The people who own the restaurants we ate in would remember me (they may well have never met another Lary), they would remember the cocktails we ordered (Black Russian, Pina Colada and Gin Fizz – 3 for 2), they would remember the wine we ordered. The only adverse reaction we had the entire break came from an English woman who insisted on turning 45 degrees to stare at me every time I spoke in a restaurant. Initially I ignored it, but after 90 minutes or so of being stared at I was getting a little bit upset. What she should have been doing was talk to her morbidly obese husband about his eating habits rather than staring at me. As we left she made a point of again staring at me, so I apologised to her that the “Entertainment” was leaving early. She didn’t take too kindly to my comment, but tough. On the upside, that evening I experimented with taking photos of the wonderful sunset on my iPhone through the bottom of a glass. I was quite pleased with the result.




We've always commented from our trips to Corfu how much the Greek people seem to like children, never more evident than when we went to the local festival held one evening whilst we were there. Midnight, drinks flowing, lamb cooking on the spit, Greek music being played by the band and loads of local kids running around, having fun and annoying no one at all. It was a strange evening as it was aimed at locals rather than tourists, we hadn’t a clue what was going on, but it was highly entertaining. we were told afterwards that it's used as a good excuse to meet up with other friends from neighboring villages who you may not have seen for a few months. We made our way back up Cardiac Hill and I conked out within minutes, that’ll be the 3* brandy I was drinking. According to Carol the festival was still going strong at 2am J


 I’ve struggled when we’re away with the portion sizes of food served in restaurants, this holiday was no different I’m afraid. Be it Corfu, Fuerteventura or Gran Canaria I just can’t eat huge portions of food these days and I feel guilty if I leave half the portion on a plate. Due to the surgery I have to chew food almost to the point of a pulp before I can swallow it properly, otherwise the valve gets gunked up. This means that as well as eating far more slowly than a normal person, I also lose my appetite fairly quickly. It sounds quite weird, but the more expensive the restaurant, the smaller the portions served. You can eat out very cheaply in Arillas, one of our favourite places is Gratesla. It’s a traditional taverna run by a family. It was nice, on our first night, to be remembered, genuinely, for our previous visits in years gone by. The food served is fresh, mainly fish, tasty and one portion would feed the entire front row of the Rams 1st XV J Two courses, wine, coffee and a cheeky brandy rarely came in at more than 5. We ended up using Gratesla mainly for lunch as it was so popular in the evenings that the service suffered a bit. We’d have three or four hours on the beach, then retire for a leisurely lunch. Three starters or a fish meze shared between us with a ½ litre of dry white wine. Walk up heartbreak hill and an afternoon snoozing by the pool. Evening involved a G’nT at Anna’s lovely bar before strolling down the hill to the cocktail bar for our 3 for 2 offer, and then deciding which restaurant we’d frequent. Horizon, relatively expensive for Arillas, but top quality. Thalassa, great food and superb service. Ammos if we were feeling like a bit of a different choice in cuisine. It was a tough holiday as you can tell. A strange quirks of Greek cooking would seem to me to be the relative lack of spices involved. The majority of dishes will have an overload of oregano, perhaps some basil or rosemary, but not a lot else. I can manage for 10 days, but I was craving a bit of chili or perhaps some paprika by the time we got home. All the restaurants had in common one thing, that was the total work ethic of the staff. It wasn’t uncommon to see the same staff working at lunchtime and again in the evening. It’s a case of making hay whilst the sun shines. Work hard from May until the end of September, and then sleep for 5 months!

We both noticed on this visit that Arillas is smartening itself up. The restaurants look better, there’s decking on some of the frontage, a coffee shop has opened which served lovely fresh croissants and a decent coffee too.  There was no rubbish lying around at all, unlike Corfu Town which had rubbish piled up in bags on every street corner. They’re even beginning to embrace to idea of recycling, albeit in a small way, but it’s a start. We did our bit by refusing plastic straws with our drinks, again a small gesture, but a start. Far fewer people seemed to be smoking, even the Greeks who must be amongst the largest population on smokers in Europe seem to have largely packed in. It was nice to sit on the sand on the beach and not to be picking fag butts up! Some of the restaurant owners mentioned that so far the season had been quiet compared to previous years, they were mainly blaming Brexit and I’ll admit we did delay our booking somewhat on the back of possible disruption. But with St Theresa of May dithering until October we felt we needed to get away regardless. It’s been a challenging 2019 so far, what with the MRI’s, Fine Needle Aspiration, biopsies, skin cancer and other scares, so it was good to just relax totally and forget about the trials and tribulations of the real world.

I've become aware that in the very few photos that have been taken of me since becoming a Lary that I’ve had my hand up by my throat subconsciously covering up the stoma, as if I’m embarrassed of it. I made the decision that on this holiday I’d “come out” and just bare all for the camera. It’s not like I can change things, or that suddenly one day my voice box will magically grow back. Also as I was often dressed just in my budgie smugglers and a smile there seems little point in hiding the plastic protruding from my neck. So from now on it’s me, my ugly face, crocked nose and my Lary. Maybe holding a Pina Colada in a fake coconut shell with pink flowers……………. 



In some way before we left for Corfu I’d been secretly dreading it. I thought I’d struggle with the heat and the walk back to Anna’s Studios. When we arrived and I found I’d made a total mess of packing my supplies I was really worried how I’d cope. Well I’m pleased to say that the hill wasn’t as hard as I envisaged, probably helped by the intake of Black Russians, Gin Fizzes and Pina Coladas. And my medical supplies lasted far longer than they do in the UK. I normally change the base plate every day and use a different type at night. On Corfu they were last up to three days without needing to be changed. I didn’t need a more soothing one to sleep with either. Perhaps assisted by the generous 5* Metaxa I had before bed. The filters would last a day and a half or longer, rather than being replaced about every 10 hours at home. Maybe the local red wine helped. Normally at home I’m having to stick a cleaning brush into my speaking valve four or five times a day, on Corfu it was once in the morning and that was it. Maybe the pre-dinner G’nT helped. So, in conclusion I think I need to live in a country that has a warm and dry climate and cheap booze. I’ve set up a Just Giving Page and all donations would be appreciated www.getclarkytoawarmclimate.com
In all seriousness, it was a great holiday, one where I hardly noticed the fact that I’m now two years into being a Lary. Pretty sure the #Stalker enjoyed herself too……………………………. 






















....................... she was 90% fueled by alcohol! 

(Just for a change all photo's on the blog were taken on my iPhone as I forgot to take my DSLR with me.............. ) 

As always, thanks for reading.
To be continued………………
#Shoulder2Shoulder



5 comments:

  1. Thanks for the insight into your Laryness. It really would be cool if they could create a new larynx in the lab and install it... maybe someday.

    ReplyDelete
    Replies
    1. Apparently that is being researched, obviously too late for me, but you never know, perhaps in 20 years time it'll be possible :)

      Delete
  2. Thanks for the update Paul, can’t wait to catch up next week at Fat Boy 7s, I’ve missed you x

    ReplyDelete
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